Welcome to Action Kidney Cancer

The United Kingdom’s only patient-led kidney cancer charity

Steve shares his experience of living with kidney cancer

Join our patient support forum for friendly patient-to-patient support and advice

Learn about Action Kidney Cancer’s patient services

Newly diagnosed with kidney cancer

Kidney cancer treatments

Fundraising

Patient Support Forum

Stronger together

In our own words

During this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of kidney cancer
Coping with a diagnosis of kidney cancer
Talking about kidney cancer
A carer’s perspective

Real stories

The lives of all these people have been affected by kidney cancer
Some are patients, some are carers, all are stories by real people sharing their experiences of living with kidney cancer

Latest kidney cancer news

2 Apr 2025

Europe has approved subcutaneous nivolumab for solid tumours

Read More

28 Mar 2025

The Big Cancer52 Conversation

Read More

24 Mar 2025

A urine test to detect the return of kidney cancer

Read More

24 Mar 2025

Spotting symptoms early: the importance of early diagnosis

Read More

24 Mar 2025

Health-related quality of life with belzutifan versus everolimus for advanced kidney cancer

Read More

10 Mar 2025

Combinations of pembrolizumab and targeted therapies for advanced clear cell kidney cancer

Read More

10 Mar 2025

Safe Sick Pay Campaign Update

Read More

27 Feb 2025

FDA grants Priority Review status for TLX250-CDx for kidney cancer PET/CT scans

Read More

25 Feb 2025

Kidney cancer research highlights from ASCO GU 2025

Read More

19 Feb 2025

Spotting symptoms early: the importance of early diagnosis

Read More

13 Feb 2025

Cancer Research UK - 74,000 cancer patients not treated on time in 2024

Read More

6 Feb 2025

New personalised cancer vaccine shows promise for advanced kidney cancer

Read More

Action Kidney Cancer

Friendship...community...encouragement...advocacy...information...support...kindness...advice...shared experiences...patient stories...research news...expert insights...empowerment...
Action Kidney Cancer
Action Kidney Cancer10 hours ago
Day two of IKCC Global Kidney Cancer Conference has started we have been networking and sharing our experiences of supporting kidney cancer patients.

We have also been listening to new idea's being shared by other patient organisations around the world and hope to learn from them.

#kidneycancer #ikcc2025 #bypatientsforpatients
Action Kidney Cancer
1View on Facebook
Action Kidney Cancer
Action Kidney Cancer1 day ago
We are delighted to be representing the patient voice at this years IKCC Global Kidney Cancer Conference in Madrid.

In the coming weeks we hope to share with everyone our experience and learnings.
Action Kidney Cancer
2View on Facebook
Action Kidney Cancer
Action Kidney Cancer3 days ago
Good news for people who are taking nivolumab: the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) has recommended approval for an injectable form of nivolumab for the treatment of solid tumours, including advanced kidney cancer. This means that it will shortly become available to patients in EU countries, and hopefully the UK will follow suit very soon. This new form of nivolumab is yet to be approved for use in the UK by the regulators.

Read more on our website here:
Action Kidney Cancer
Europe has approved subcutaneous nivolumab for solid tumours - Action Kidney Cancer
The Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) has recommended approval for an injectable form of nivolumab for the treatment of solid tumours, including advanced kidney cancer.
4View on Facebook
Action Kidney Cancer
Action Kidney Cancer1 week ago
Earlier this week, Sharon Deveson Kell represented kidney cancer patients and families at the Big Cancer52 Conversation in Manchester. This was the fifth Big Cancer52 Conversation, and the first one to be held outside London, bringing together patient organisations representing rare and less common cancers with other charities, healthcare, government, and pharmaceutical industry sectors to collaborate and share best practice on healthcare inequalities.

Read more on our website here:
Action Kidney Cancer
The Big Cancer52 Conversation - Action Kidney Cancer
Earlier this week, Sharon Deveson Kell represented kidney cancer patients and families at the Big Cancer52 Conversation in Manchester. This was the fourth Big Cancer52 Conversation, bringing together patient organisations representing rare and less common cancers with other charities, healthcare, go...
View on Facebook
Action Kidney Cancer
Action Kidney Cancer2 weeks ago
Exciting news: A study has shown that a simple urine test could detect the return of kidney cancer, spare patients from having frequent CT scans and speed up access to treatment.

Read more on our website here:
Action Kidney Cancer
A urine test to detect the return of kidney cancer - Action Kidney Cancer
https://actionkidneycancer.org/wp-content/uploads/speaker/post-52043.mp3?cb=1742818059.mp3 A study has shown that a simple urine test [...]
8View on Facebook
Action Kidney Cancer
Action Kidney Cancer4 weeks ago
N is for Newly diagnosed

If you, a family member or friend have recently been diagnosed with kidney cancer then please take a look at this section in our website.

This section answers some of the more common questions asked about kidney cancer, it includes information on many topics including 'How is kidney cancer treated?' and much more.

To visit this section of our website please follow the link below:

https://actionkidneycancer.org/kidney.../newly-diagnosed/

#kidneycancer #bypatientsforpatients #StrongerTogether
Action Kidney Cancer
View on Facebook
[php_everywhere instance="3"]